
This is a blog where I share my thoughts on life as an almost 40-year-old woman. I have chronic health conditions that are genetic and autoimmune. I have many years of past healthcare advocacy work. I was an FDA patient representative for several years. My life experiences are my own personal experiences. The insights I share on this site do not constitute medical advice. I am not a licensed healthcare professional. I share my story and experiences for several reasons—among them, so that I can stay connected with friends and family, so that I can connect with others living with similar experiences, and so that my story may help someone else who is also struggling with mystery illnesses and multiple possible uncertain diagnoses, like mine. I have a static link to my first post, explaining more about my health situation in detail, below. I encourage you to read it first, before looking at anything else.